HomeMy WebLinkAboutNeurofibromatosis (NF) Awareness Month 2009PROCLAMATION
VILLAGE OF NORTH PALM BEACH
OFFICE OF THE MAYOR
NEUROFIBROMATOSIS (NF) AWARENESS MONTH
WHEREAS, NF causes tumors to grow on nerves anywhere in the body, and can cause
bone and skin tumors, bone deformities such as spine scoliosis; leg bowing or twisting, coffee
colored spots on the skin, deafness, blindness; learning disabilities; debilitating pain, heart
defects and even death; and
WHEREAS, NF is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy,
Tay Sachs and Huntington's Disease combined; and
WHEREAS, NF can appear in any family and is worldwide in distribution, affects both
sexes equally and has no particular racial or ethnic distribution; and
WHEREAS, While over 125,000 Americans have NF and one of every 3,000 newborns
will develop the disorder, is still is relatively unknown to the public and much remains to be
done to raise awareness of the disease and the need for funding for research to prevent, treat and
cure NF;
WHEREAS, The Children's Tumor Foundation (www.ctforg, 800-323-7938) leads the
efforts to fund critical research aimed at finding the causes of the disorder and developing
treatments and a cure, and to provide support to people and families affected by NF; and
WHEREAS, The Children's Tumor Foundation is observing May as National
Neurofibromatosis (NF) Awareness Month nationally to inform the public about this common
genetic disorder;
NOW, THEREFORE, I, David B. Norris, by virtue of the authority vested in me as Mayor
of the Village of North Palm Beach, do hereby proclaim May 2009 as
NEUROFIBROMATOSIS (NF) AWARENESS MONTH
in the Village of North Palm Beach, Florida, and urge our citizens to join the Children's Tumor
Foundation's effort to increase awareness ofthe importance of finding a treatment and a cure to NF.
IN WITNESS WHEREOF, I have hereunto set my hand and caused the Seal of the Village
ofNorth Palm Be~ac~i~,o~be affixed this 30"' day c
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